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<?xml version="1.0" encoding="UTF-8"?><rss version="2.0" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:wfw="http://wellformedweb.org/CommentAPI/" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:atom="http://www.w3.org/2005/Atom" xmlns:sy="http://purl.org/rss/1.0/modules/syndication/" xmlns:slash="http://purl.org/rss/1.0/modules/slash/" > <channel> <title>National Association of Chronic Disease Directors</title> <atom:link href="https://chronicdisease.org/feed/" rel="self" type="application/rss+xml" /> <link>https://chronicdisease.org</link> <description>Promoting Health, Preventing Disease</description> <lastBuildDate>Wed, 08 May 2024 19:50:18 +0000</lastBuildDate> <language>en-US</language> <sy:updatePeriod> hourly </sy:updatePeriod> <sy:updateFrequency> 1 </sy:updateFrequency> <generator>https://wordpress.org/?v=6.5.3</generator> <image> <url>https://chronicdisease.org/wp-content/uploads/2020/11/nacdd_brandmark-150x150.png</url> <title>National Association of Chronic Disease Directors</title> <link>https://chronicdisease.org</link> <width>32</width> <height>32</height></image> <item> <title>A Message From the CEO</title> <link>https://chronicdisease.org/a-message-from-the-ceo/</link> <dc:creator><![CDATA[Stacey Evans]]></dc:creator> <pubDate>Tue, 07 May 2024 18:26:23 +0000</pubDate> <category><![CDATA[Newsroom]]></category> <guid isPermaLink="false">https://chronicdisease.org/?p=92833</guid> <description><![CDATA[May 2024 Impact Brief In April, NACDD welcomed leaders from 11 state and territorial health departments, as well as national partners including the Association of State and Territorial Health Officials […]]]></description> <content:encoded><![CDATA[<figure class="wp-block-image size-thumbnail"><img decoding="async" width="150" height="150" src="https://chronicdisease.org/wp-content/uploads/2024/05/John-Robitscher_circle-150x150.png" alt="NACDD CEO John W. Robitscher, MPH" class="wp-image-92874" srcset="https://chronicdisease.org/wp-content/uploads/2024/05/John-Robitscher_circle-150x150.png 150w, https://chronicdisease.org/wp-content/uploads/2024/05/John-Robitscher_circle-300x300.png 300w, https://chronicdisease.org/wp-content/uploads/2024/05/John-Robitscher_circle.png 714w" sizes="(max-width: 150px) 100vw, 150px" /></figure> <p class="has-green-color has-text-color has-link-color wp-elements-1384b49a55fa5788d5e24c23ebf32ca4"><strong>May 2024 Impact Brief</strong></p> <p>In April, NACDD welcomed leaders from 11 state and territorial health departments, as well as national partners including the Association of State and Territorial Health Officials (ASTHO), American Public Health Association (APHA), RAND, StreetWyze, and others, to our headquarters in Decatur, Georgia for the Social Justice Framework Thought Leader Roundtable. The two days of intensive discussions centered around how to integrate NACDD’s <a href="https://chronicdisease.org/cjph/framework/">Social Justice Framework</a> into the work of public health practitioners to more purposefully address social determinants of health, promote health equity, and achieve social justice.</p> <p>Developed in collaboration with partners, the framework features five pillars: Ethical & Social Responsibility, Personal & Communal Intentionality, Centering Intersectionality, Prioritizing Multi and Interdisciplinary Partnerships, and Reflexivity & Data Processes. A goal of the roundtable is to develop strategies to operationalize the Framework’s five pillars moving forward. A list of potential action steps was developed collaboratively, and a final report will be shared in coming months.</p> <ul><li>Learn more: Watch our General Member Webinar on <a href="https://chronicdisease.org/cphl/learning-hub/general-member-webinar-library/"><em>Leveraging NACDD’s Social Justice Framework to Advance Public Health Practice</em></a>.</li></ul> <p>As we reflect on several national observances this month, we see the thread of how social injustice plays a role in many health disparities, and I’d like to highlight some of NACDD’s work in these areas.</p> <figure class="wp-block-image size-large"><img fetchpriority="high" decoding="async" width="1024" height="683" src="https://chronicdisease.org/wp-content/uploads/2024/05/Social-Justice-TLRT-1024x683.jpg" alt="A group of NACDD staff and guests attending the Social Justice Thought Leader Roundtable pose for a photo outside of NACDD headquarters in Decatur, Georgia." class="wp-image-92865" srcset="https://chronicdisease.org/wp-content/uploads/2024/05/Social-Justice-TLRT-1024x683.jpg 1024w, https://chronicdisease.org/wp-content/uploads/2024/05/Social-Justice-TLRT-300x200.jpg 300w, https://chronicdisease.org/wp-content/uploads/2024/05/Social-Justice-TLRT-768x512.jpg 768w, https://chronicdisease.org/wp-content/uploads/2024/05/Social-Justice-TLRT-1536x1024.jpg 1536w, https://chronicdisease.org/wp-content/uploads/2024/05/Social-Justice-TLRT-2048x1365.jpg 2048w" sizes="(max-width: 1024px) 100vw, 1024px" /></figure> <p class="has-charcoal-color has-text-color has-link-color has-small-font-size wp-elements-9baa000aacfa2fa91b09afd3ad9c0572">NACDD welcomed leaders from 11 state and territorial health departments, as well as national partners including ASTHO, APHA, RAND, StreetWyze, to our headquarters in Decatur, Georgia for the Social Justice Framework Thought Leader Roundtable.</p> <p>The World Health Organization (WHO)’s <a href="https://www.who.int/campaigns/world-no-tobacco-day" target="_blank" rel="noopener">World No Tobacco Day</a> is on May 31. Social determinants of health play a large role in tobacco use, which is the leading cause of preventable disease, disability, and death in the United States. Due to factors like discrimination, stress, anxiety, and mental health issues stemming from living with a disability, people with disabilities experience a disproportionately higher burden of tobacco- and cancer-related health disparities. People with disabilities are more likely to smoke than adults without disabilities—18.5% compared to 10.9%.</p> <p>NACDD is partnering with <a href="https://www.lakeshore.org/" target="_blank" rel="noopener">Lakeshore Foundation</a> to advance the prevention of commercial tobacco use and cancer in populations experiencing tobacco- and cancer-related health disparities with a focus on people with disabilities (PWD), including veterans. The National Disability Inclusion Network for Tobacco Control and Cancer Prevention is supported by a five-year, CDC-funded cooperative agreement that brings together a consortium of nine national organizations to increase equitable delivery of tobacco prevention and cancer-related strategies and related interventions. In addition to the National Network, NACDD will establish regional Communities of Practice, provide training and technical assistance, and implement mass reach health communication strategies. <a href="https://chronicdisease.org/wp-content/uploads/2024/05/The-Disability-Inclusion-Network-Info-Sheet.pdf" data-type="link" data-id="https://chronicdisease.org/wp-content/uploads/2024/05/The-Disability-Inclusion-Network-Info-Sheet.pdf">(Learn more)</a></p> <p>May is also Mental Health Awareness Month, and the <a href="https://www.cdc.gov/healthyyouth/data/yrbs/index.htm" target="_blank" rel="noopener">2021 Youth Risk Behavior Survey</a> revealed that poor mental health and suicidal thoughts and behaviors are increasing for nearly all groups of youth. A staggering 42% of high school students are grappling with persistent feelings of sadness or hopelessness. In 2022, NACDD was awarded a five-year cooperative agreement through the CDC’s National Initiative to Advance Health Equity in K-12 Education by Preventing Chronic Disease and Promoting Healthy Behaviors. This month, NACDD and partners Child Trends and Mental Health America <a href="https://app.smartsheet.com/b/form/0c2e7f3627c94739a4e223b44492a7aa" target="_blank" rel="noopener">invite states to apply</a> to participate in a two-year learning collaborative to advance health equity in schools through supports for developing evidence-based policies, practices, and programs focused on the emotional well-being of students and staff. Applications will be reviewed on a rolling basis, with a final deadline of Friday, July 5. Learn more about school health in an <a href="https://vimeo.com/932992659" target="_blank" rel="noopener">NACDD webinar</a> about CDC’s new resource for promoting mental health and wellbeing in schools.</p> <p>In addition, our recent General Member Webinar, “<a href="https://vimeo.com/940941815" target="_blank" rel="noopener">Social Connectedness From Why to How</a>,” talks about policy, systems or environmental change approaches that can improve social connectedness, which has a strong correlation to mental wellbeing.</p> <p>I’d like to also recognize Lupus Awareness Month. Lupus is yet another health condition in which Black/African Americans, Hispanic/Latinos, Native American/Alaska Native and Asian American/Pacific Islanders are <a href="https://www.lupus.org/health-disparities" target="_blank" rel="noopener">disproportionately impacted</a>. NACDD is proud to be in partnership with the Lupus Foundation of America to support its mission to improve the quality of life for all people affected by lupus through research, <a href="https://www.lupus.org/resources/community-health-worker-resource-hub" target="_blank" rel="noopener">education</a>, support and advocacy. Follow us on LinkedIn and Facebook as we share more information throughout the month.</p> <p>As we celebrate <a href="https://www.asianpacificheritage.gov/" target="_blank" rel="noopener">Asian American, Native Hawaiian, and Pacific Islander Heritage Month</a>, and the significant contributions of these communities to our nation, I invite you to watch our General Member Webinar from last July, “<a href="https://vimeo.com/850926079" target="_blank" rel="noopener">One Acronym, Many Communities of AANHPI.”</a> It highlights the diversity of the Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities and how data disaggregation (splitting large, general categories into more specific groups) plays a key role in understanding the complexities and varied needs of the AANHPI communities. </p> <p>Finally, I’d like to thank Patrick Luces, Chronic Disease Director of the Guam Department of Public Health & Social Services, and the <a href="https://chronicdisease.org/cphl/leadership-and-practice-networks/pacific-chronic-disease-council/">Pacific Chronic Disease Council</a> (PCDC) for the beautiful plaque presented to NACDD during the May Board of Directors meeting “in recognition and appreciation for exemplary service and valuable support in building a healthy Pacific Community.” We appreciate this honor as well as the invaluable work of the PCDC.</p> <p>—</p> <p><strong>More Social Justice Information Recommendations</strong></p> <p>Read NACDD’s <a href="https://mailchi.mp/chronicdisease.org/new-health-equity-newsletter-the-social-justice-revolutionary">Center for Justice in Public Health’s new newsletter</a>. Each issue will explore the intersection of public health and social justice, spotlight innovative projects, and offer resources to support your work in creating healthier, more equitable communities. </p> <ul><li>Read: <a href="https://apha.org/what-is-public-health/generation-public-health/our-work/social-justice" target="_blank" rel="noopener">Social Justice and Public Health – Why Should We Care?</a></li> <li>Read: <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3222512/" target="_blank" rel="noopener">Health Disparities and Health Equity: The Issue Is Justice</a></li> <li>Watch: <a href="https://www.youtube.com/watch?v=I4wPyaIAxiI" target="_blank" rel="noopener">The differences between Equality, Equity, and Justice</a></li> <li>Watch: <a href="https://www.youtube.com/watch?v=D9Ihs241zeg" target="_blank" rel="noopener">Chimamanda Ngozi Adichie: The danger of a single story</a></li></ul>]]></content:encoded> </item> <item> <title>Understanding The Equitable and Ethical Use of Data</title> <link>https://chronicdisease.org/understanding-the-equitable-and-ethical-use-of-data/</link> <dc:creator><![CDATA[Lauren Wilkins]]></dc:creator> <pubDate>Tue, 07 May 2024 13:00:00 +0000</pubDate> <category><![CDATA[Newsroom]]></category> <category><![CDATA[Impact Brief]]></category> <guid isPermaLink="false">https://chronicdisease.org/?p=91514</guid> <description><![CDATA[The Cardiovascular Health (CVH) Council leaders and Members expressed the need for more trainings around data and health equity. In a coordinated effort, NACDD’s Center for Justice in Public Health […]]]></description> <content:encoded><![CDATA[<p>The Cardiovascular Health (CVH) Council leaders and Members expressed the need for more trainings around data and health equity. In a coordinated effort, NACDD’s Center for Justice in Public Health (CJPH), Center for Public Health Leadership (CPHL), and CVH Team offered a series of trainings to help NACDD members understand the equitable and ethical use of data and practical skills to start improving equity in their organization’s data. This collaboration is in alignment with <a href="https://chronicdisease.org/nacdd-releases-transformative-social-justice-framework-to-guide-public-health-practice/">NACDD’s Social Justice Framework for Public Health Professionals</a> highlighting <em>Reflexivity and Data Processes</em> as a pillar that can inform public health data practices.</p> <p>A planning team collaborated with <a href="https://weallcount.com/" target="_blank" rel="noopener">We All Count</a>, a project for equity in science, to offer <a href="//weallcount.com/learn-with-us/">three trainings</a> to NACDD members with an interest in data equity and its application. Trainings will cover topics and skills such as:</p> <ul><li>Compelling cases for why data projects are not objective (and why that’s a good thing!);</li> <li>Identifying how choice points faced in public health provide an opportunity to embed equity into work;</li> <li>Recognizing the benefits of a cohesive system for identifying and addressing equity issues in data; and</li> <li>Applying practical, concrete approaches to data equity.</li></ul> <p>The first session, Data Equity Primer, was attended by 225 NACDD Members, staff, and several CDC participants on March 26, 2024. This training served as an introduction to what data equity is and other core issues. Subsequent training courses include Foundations of Data Equity, which explores the Data Equity Framework, a seven-step approach to data processes that are congruent with equity priorities and will be offered in late April. The final session, Advancing the Data Equity Framework, will provide participants with an even deeper dive into how to apply tools and techniques. Sessions will be scheduled over a five-week period in May-June 2024. NACDD is excited about what members will learn through these trainings and how they will apply lessons learned to their organization’s data processes.</p>]]></content:encoded> </item> <item> <title>Public Health Framework for Collaborative Arthritis Management and Wellbeing</title> <link>https://chronicdisease.org/public-health-framework-for-collaborative-arthritis-management-and-wellbeing/</link> <dc:creator><![CDATA[Lauren Wilkins]]></dc:creator> <pubDate>Mon, 06 May 2024 14:42:00 +0000</pubDate> <category><![CDATA[Newsroom]]></category> <category><![CDATA[Association News]]></category> <category><![CDATA[Impact Brief]]></category> <category><![CDATA[Arthritis]]></category> <guid isPermaLink="false">https://chronicdisease.org/?p=91505</guid> <description><![CDATA[The Centers for Disease Control and Prevention’s Arthritis Management and Well-Being Program, NACDD’s Arthritis portfolio, and local partners in Iowa are piloting the “Public Health Framework for Collaborative Arthritis Management […]]]></description> <content:encoded><![CDATA[<p>The Centers for Disease Control and Prevention’s <a href="https://www.cdc.gov/arthritis/index.htm" target="_blank" rel="noopener">Arthritis Management and Well-Being Program</a>, NACDD’s Arthritis portfolio, and local partners in Iowa are piloting the “Public Health Framework for Collaborative Arthritis Management and Wellbeing.” Together with the <a href="https://iacommunityhub.org/" target="_blank" rel="noopener">Iowa Community HUB</a> and <a href="https://phciowa.org/" target="_blank" rel="noopener">Primary Health Care</a>, a Federally Qualified Health Center in Des Moines, Iowa, we are working to improve quality of life for adults with arthritis.</p> <p>This innovative framework will:</p> <ul><li>Expand access to <a href="https://oaaction.unc.edu/aaebi/" target="_blank" rel="noopener">arthritis-appropriate evidence-based interventions</a> (AAEBIs) that focus on self-management education and physical activity.</li> <li>Encourage healthcare providers to screen arthritis patients for function, pain, and physical activity, and provide counseling about the benefits of physical activity for reducing arthritis pain and limitations.</li> <li>Increase referrals to AAEBIs for arthritis patients. </li> <li>Promote physical activity and self-management skills to manage arthritis symptoms.</li></ul> <p>This initiative aligns with the NACDD Strategic Map, Strategy E “Accelerate Workforce Development in States/Territories.” Building on the success of the <a href="https://chronicdisease.org/wp-content/uploads/2023/12/Arthritis-Expert-Panel-and-Design-Team-Summary.pdf">Arthritis Expert Panel and Design Team</a>, NACDD has formed a new group: the Arthritis Expert Panel II 2024. This diverse group of experts, partners, and collaborators is providing strategic direction for the pilot project and refining implementation strategies to improve quality of life for adults with arthritis and other chronic conditions.</p> <p>Support our efforts by spreading awareness among healthcare providers of the free, online <a href="https://www.medscape.org/viewarticle/983780?ecd=par_nacdd_distr_mscpedu" target="_blank" rel="noreferrer noopener">Lifestyle Management Programs for Arthritis: Expand Your Knowledge on Evidence-Based Interventions activity</a>, developed collaboratively by NACDD and Medscape. This training offers up to 0.25 continuing education credits and helps healthcare providers identify areas where they can improve their knowledge of non-pharmacologic treatments and learn how to integrate AAEBIs into their patients’ care plans.</p> <p>This activity is intended for primary care physicians, physical therapists, occupational therapists, community health workers, rheumatologists, orthopedic surgeons, sports medicine physicians, nurses, nurse practitioners, physician assistants, and other healthcare practitioners who provide care to patients with arthritis.</p> <p>For more information, or to get involved please contact <a href="mailto:Jchevan@chronicdisease.org">Julia Chevan</a>.</p> <p>NACDD’s arthritis portfolio is part of the <a href="https://chronicdisease.org/cahc/">Center for Advancing Healthy Communities.</a></p>]]></content:encoded> </item> <item> <title>Public Health AmeriCorps First Cohort Graduation</title> <link>https://chronicdisease.org/public-health-americorps-first-cohort-graduation/</link> <dc:creator><![CDATA[Lauren Wilkins]]></dc:creator> <pubDate>Mon, 06 May 2024 12:25:00 +0000</pubDate> <category><![CDATA[Newsroom]]></category> <category><![CDATA[Association News]]></category> <category><![CDATA[Center for Advancing Healthy Communities]]></category> <category><![CDATA[Impact Brief]]></category> <category><![CDATA[AmeriCorps]]></category> <guid isPermaLink="false">https://chronicdisease.org/?p=90994</guid> <description><![CDATA[NACDD’s Public Health AmeriCorps (PHA) program has reached a significant and exciting milestone with the graduation of its first cohort of Service Members! Since Spring and Summer 2023, the program […]]]></description> <content:encoded><![CDATA[<p>NACDD’s <a href="https://chronicdisease.org/public-health-americorps/">Public Health AmeriCorps</a> (PHA) program has reached a significant and exciting milestone with the graduation of its first cohort of Service Members! Since Spring and Summer 2023, the program has recruited and placed 12 Service Members across eight states to propel state- and community-level efforts addressing food and nutrition security, safe physical activity access, and social connectedness through policy, systems, and environmental change approaches.</p> <p>As of last month, five Service Members successfully completed their service term, with the remaining cohorts slated to graduate next month. These Service Members have not only demonstrated their exceptional commitment to service but have also honed their skills in navigating complex public health challenges including strategies for advancing equity and building healthy, resilient communities. NACDD recognizes their pivotal role in shaping the future of public health and is committed to supporting its PHA alumni as they take the next step in their professional journeys.</p> <p>All Host Sites reported enhancements in program efficiency, effectiveness, or reach as a result of the Service Members’ efforts; the following testimonials highlight their appreciation and showcase the Service Members’ transformative impact:</p> <ul><li>“We appreciate the work that [the Service Member] did making connections for the sustainability of the Lalumier garden as well as the research for the Good Neighbor Policy. Both projects will run more efficiently with the supports that she put in place.” – Jackie Joyner-Kersee Food Agriculture Nutrition Innovation Center/Gateway Region YMCA Host Site Supervisor</li></ul> <ul><li>“The Service Member has improved the efficiency, effectiveness, and scale of the technical assistance that Minnesota Department of Health (MDH) is able to provide to local public health Statewide Health Improvement Partnership staff. This has included assisting planning for technical assistance, developing systems for consistent and timely follow-up, creating materials such as “In Case You Missed It/At a Glance” documents, and expanded MDH staff’s ability to connect with local public health.” – Minnesota Department of Health Host Site Supervisor</li></ul> <ul><li>“The Service Member has been able to support capacity around raising awareness of chronic condition prevention and management resources for Washingtonians. Additionally, Member has supported communications, amplifying reach and impact through expanded capacity.” – Washington State Department of Health Host Site Supervisor</li></ul> <p>One of PHA’s Host Site Supervisor-Service Member duos at the Philadelphia Department of Health was recently featured in a new podcast from the <a href="https://www.astho.org/" target="_blank" rel="noopener">Association of State and Territorial Health Officials (ASTHO)</a>, “<a href="https://www.astho.org/communications/blog/building-public-health-leaders-voices-from-public-health-americorps/" target="_blank" rel="noopener">Building Public Health Leaders: Voices from Public Health AmeriCorps</a>.” Ousmane Diarra, PHA Service Member and pre-med student, and Jennifer Aquilante, PHA Host Site Supervisor and Food Policy Coordinator, share their PHA story including the program’s service-learning experience, professional development opportunities, and benefits for Service Members and Host Sites alike. <a href="https://www.astho.org/communications/blog/building-public-health-leaders-voices-from-public-health-americorps/" target="_blank" rel="noopener">Listen</a> to learn more about how Ousmane has supported activities that enhance local food systems and expand the urban agriculture network in Philadelphia throughout his service year.</p> <p>NACDD maintains an unwavering commitment to bolstering the public health workforce by broadening the reach of its program. This month, NACDD PHA is concluding recruitment efforts for the second programmatic year, with the goal of placing 30 Service Members across 14 states (Alaska, Illinois, Iowa, Kansas, Louisiana, Minnesota, Mississippi, Missouri, Nevada, New Jersey, Oklahoma, Pennsylvania, South Carolina, and West Virginia) by July.</p> <p>Looking ahead into Year 3, the program is recruiting additional Host Sites who are interested in leveraging PHA Service Members to expand capacity within their organizations and programs. If you are interested in learning more about becoming a Host Site, please reach out to NACDD’s PHA Program Manager <a href="mailto:tthompson@chronicdisease.org">Tierney Thomison</a>.</p> <p>A partnership between AmeriCorps and the Centers for Disease Control and Prevention, the PHA program is a five-year, $400 million investment from the American Rescue Plan Act that supports the recruitment, training, and development of the next generation of public health leaders. The two main goals of the program include:</p> <ul><li>Addressing public health needs of local communities by providing support in state and local public health settings and advancing more equitable health outcomes for underserved communities; and</li> <li>Creating pathways to good quality public health-related careers through onsite experience and training, with a focus on recruiting AmeriCorps members who reflect the communities in which they will serve.</li></ul>]]></content:encoded> </item> <item> <title>Long COVID as a Chronic Disease</title> <link>https://chronicdisease.org/long-covid-as-a-chronic-disease/</link> <dc:creator><![CDATA[Lauren Wilkins]]></dc:creator> <pubDate>Fri, 03 May 2024 18:20:00 +0000</pubDate> <category><![CDATA[Impact Brief]]></category> <category><![CDATA[Center for Public Health Leadership]]></category> <category><![CDATA[Center for Public Health Leadership|Virtual]]></category> <category><![CDATA[Newsroom]]></category> <guid isPermaLink="false">https://chronicdisease.org/?p=91000</guid> <description><![CDATA[In March 2024, NACDD’s Center for Public Health Leadership hosted the first ever Generate, Educate, Activate, Respond (GEAR) Group focused on Long COVID as a Chronic Disease: Assessment and Mitigation. […]]]></description> <content:encoded><![CDATA[<p>In March 2024, NACDD’s <a href="https://chronicdisease.org/cphl/">Center for Public Health Leadership</a> hosted the first ever <a href="https://chronicdisease.org/cphl/learning-hub/gear-groups/">Generate, Educate, Activate, Respond (GEAR) Group</a> focused on Long COVID as a Chronic Disease: Assessment and Mitigation. Long COVID increases the risk of developing chronic conditions like diabetes, worsens the clinical outcomes of pre-existing chronic conditions like cardiovascular disease (CVD), and can be considered a standalone chronic disease. Given all of this, the GEAR Group topic group aligned most closely with NACDD’s strategic objective to accelerate chronic disease workforce development in states and territories. </p> <p>During the weekly GEAR Group sessions, public health practitioners from eight states (Idaho, Kentucky, Maryland, Michigan, Minnesota, Utah, Vermont, and West Virginia) presented cases of their ongoing or planned work on topics ranging from communication planning, data access, partnership building, key stakeholder buy in, team-based approaches and more aspects related to Long COVID program planning and sustainability. Participants received valuable and practical feedback, recommendations, and resources on their cases from peers and NACDD experts and were able to stretch their thinking to consider innovative ways to address Long COVID in the context of chronic disease management. GEAR Groups are peer-to-peer, case-based, action learning opportunities for state, territorial, and tribal chronic disease professionals. Learn more about the <a href="https://chronicdisease.org/cphl/">Center for Public Health Leadership</a> and see upcoming <a href="https://chronicdisease.org/cphl/learning-hub/gear-groups/">GEAR Group opportunities</a>.</p>]]></content:encoded> </item> <item> <title>Shine a Light on Lupus: Partnering with Community Health Workers to Raise Lupus Awareness</title> <link>https://chronicdisease.org/shine-a-light-on-lupus-partnering-with-community-health-workers-to-raise-lupus-awareness/</link> <dc:creator><![CDATA[Lauren Wilkins]]></dc:creator> <pubDate>Thu, 02 May 2024 20:54:35 +0000</pubDate> <category><![CDATA[Newsroom]]></category> <category><![CDATA[Association News]]></category> <guid isPermaLink="false">https://chronicdisease.org/?p=91581</guid> <description><![CDATA[This May for Lupus Awareness Month, the Lupus Foundation of America (LFA) will continue its effort to Make Lupus Visible, encouraging everyone to raise awareness for the often invisible and […]]]></description> <content:encoded><![CDATA[<figure class="wp-block-image size-large"><img decoding="async" width="1024" height="536" src="https://chronicdisease.org/wp-content/uploads/2024/04/2024-May-is-LAM-FB-TW-1024x536.png" alt="2024 May is Lupus Awareness Month" class="wp-image-92705" srcset="https://chronicdisease.org/wp-content/uploads/2024/04/2024-May-is-LAM-FB-TW-1024x536.png 1024w, https://chronicdisease.org/wp-content/uploads/2024/04/2024-May-is-LAM-FB-TW-300x157.png 300w, https://chronicdisease.org/wp-content/uploads/2024/04/2024-May-is-LAM-FB-TW-768x402.png 768w, https://chronicdisease.org/wp-content/uploads/2024/04/2024-May-is-LAM-FB-TW.png 1200w" sizes="(max-width: 1024px) 100vw, 1024px" /></figure> <p>This May for Lupus Awareness Month, the Lupus Foundation of America (LFA) will continue its effort to <strong>Make Lupus Visible</strong>, encouraging everyone to raise awareness for the often invisible and devastating disease while also raising funds to support lupus research, education programs and support services. There are many ways you can make an impact for Lupus Awareness Month and help <em>make lupus visible</em> – whether it’s sharing social media messages, sharing educational materials or promoting lupus awareness in your community. Find shareable Lupus Awareness Month tools and ways to get involved at <a href="http://lupus.org/LupusAwarenessMonth" target="_blank" rel="noopener">lupus.org/LupusAwarenessMonth</a>.</p> <p>The LFA has been leading the fight against lupus for over 40 years and is dedicated to improving the quality of life for all people affected by lupus through programs of research, education, support and advocacy. Our efforts have stimulated advances in lupus research that are providing insight into the underlying causes of lupus and its progression while creating unprecedented opportunities to expand our understanding of lupus. LFA programs are patient-centered and evidence-based to address urgent and unmet needs of the lupus community.</p> <p>Lupus is a complex, chronic autoimmune disease that can cause inflammation and pain in any part of the body. Anyone can develop lupus, but lupus disproportionately impacts women ages 15 to 44 and people who are Black/African American, Asian American, Hispanic/Latino, Native American, or Pacific Islander. Learn more about lupus at <a href="http://lupus.org/resources/what-is-lupus" target="_blank" rel="noopener">lupus.org/resources/what-is-lupus</a>. </p> <p>Members of racial and ethnic minoritized populations and underserved communities generally experience poorer overall health outcomes, lower levels of access to quality healthcare, and lower life expectancy as compared to Whites. These communities are also burdened disproportionately by chronic diseases like lupus. Additionally, the higher burden of disease and lack of preventive care and disease management support among racial and ethnic minoritized populations contributes to higher healthcare costs.</p> <p><a href="https://www.lupus.org/news/2019-lupus-awareness-survey-summary" target="_blank" rel="noopener">Over half of Americans (63%)</a> have never heard of or know little or nothing about lupus, underscoring the urgent need to raise awareness of the disease’s brutal impact on every part of a person’s life. Because many symptoms and effects of lupus are invisible, it can often leave those living with lupus feeling misunderstood and isolated.</p> <p>Understanding that there is a need to increase awareness and access to resources in underserved and under-resourced communities, the LFA recognizes the importance of involving Community Health Workers (CHWs). A community health worker (CHW) is a trained, locally based, culturally competent lay healthcare worker who is uniquely situated to serve as a bridge between communities, healthcare systems, public health, and social services. CHWs provide services that improve healthcare access and education to promote understanding of health problems like lupus.</p> <p><a href="https://www.lupus.org/resources/community-health-worker-resource-hub" target="_blank" rel="noopener"><strong>A Community Health Worker Resource Hub</strong></a><strong> was launched in early 2024</strong> through LFA’s Partners United for Sustainable Lupus Education (PULSE) program and in partnership with AstraZeneca (AZ). PULSE is funded through a five-year cooperative agreement with the Centers for Disease Control and Prevention (CDC). The goal of PULSE is to increase awareness of the signs and symptoms of lupus, reduce the time to an accurate diagnosis, and improve the overall quality of life for people with lupus (PWL).</p> <p>The CHW hub features on-demand learning modules to increase CHW’s knowledge about lupus including the signs and symptoms, treatments, resources and support available to PWL. The CHW Resource Hub includes downloadable resources that can be shared in your community. A certificate of completion is available upon the completion of the post-survey, each module is 0.5 professional development hours.</p> <p>The LFA seeks to use the CHW Program as a model to expand its outreach and engagement with non-clinical professions that are critical to sustaining the health and well-being of PWL such as patient navigators and social workers. Together we can work towards the goal of reducing the time to diagnosis as well as improving the overall quality of life of those living with lupus. Visit the CHW Resource Hub at <a href="http://lupus.org/CHW" target="_blank" rel="noopener">lupus.org/CHW</a>.</p> <p class="has-small-font-size">The Partners United for Lupus Sustainable Education and Awareness (PULSE) Project is supported, in part, by the Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services under cooperative agreement #NU58DP006907. Funds received are used to support campaigns, initiatives and resources developed in support of the PULSE Project. </p>]]></content:encoded> </item> <item> <title>Million Hearts® Self-Measured Blood Pressure Monitoring (SMBP) Implementation for Pregnant and Postpartum Persons</title> <link>https://chronicdisease.org/million-hearts-self-measured-blood-pressure-monitoring-smbp-implementation-for-pregnant-and-postpartum-persons/</link> <dc:creator><![CDATA[Lauren Wilkins]]></dc:creator> <pubDate>Thu, 02 May 2024 20:27:48 +0000</pubDate> <category><![CDATA[Newsroom]]></category> <guid isPermaLink="false">https://chronicdisease.org/?p=91576</guid> <description><![CDATA[NACDD has partnered with Million Hearts® and the Preeclampsia Foundation with a shared goal of improving hypertension management and health outcomes for pregnant and postpartum persons. While the evidence, utility, […]]]></description> <content:encoded><![CDATA[<p>NACDD has partnered with Million Hearts® and the Preeclampsia Foundation with a shared goal of improving hypertension management and health outcomes for pregnant and postpartum persons. While the evidence, utility, and value of self-measured blood pressure monitoring (SMBP) to improve hypertension control in the general adult population is widely recognized, there are additional barriers that need to be addressed to expand SMBP use among pregnant or postpartum persons. </p> <p>In support of the goal to improve maternal health outcomes through more widespread use of SMBP, NACDD is convening a wide range of maternal and cardiovascular health experts, researchers, public health professionals, and policy makers through a series of meetings to brainstorm solutions, create an action plan, and outline next steps to support adoption of SMBP into maternal healthcare practice standards.</p> <p>The first meeting in the series, a virtual Listening Session, took place on March 21<sup>st</sup> and gathered the perspectives of many maternal health practitioners on the facilitators of and barriers to fully implementing SMBP for pregnant and post-partum persons. The feedback from the Listening Session and key informant interviews with professional associations that provide guidance on maternal healthcare practice, informed the agenda for an upcoming Action Planning Summit on May 6, 2024. Summit topics will include maternal SMBP research needs, access and coverage, equity issues, transitions of care, and more.</p> <p>A primary outcome of the SMBP Implementation for Pregnant and Postpartum Persons meeting series will be a white paper detailing SMBP best practices and standards of care, research gaps, communication needs, and advocacy approaches specific to the maternal population. Visit the <a href="https://chronicdisease.org/page/cardiovascularhealth/national-partners/">CVH Team page</a> to learn more about the project and to view the white paper when it is available later in 2024.</p>]]></content:encoded> </item> <item> <title>Upcoming Webinar: Adverse Childhood Experiences Prevention in the Chickasaw Nation</title> <link>https://chronicdisease.org/upcoming-webinar-adverse-childhood-experiences-prevention-in-the-chickasaw-nation/</link> <dc:creator><![CDATA[Lauren Wilkins]]></dc:creator> <pubDate>Thu, 02 May 2024 20:15:38 +0000</pubDate> <category><![CDATA[Newsroom]]></category> <category><![CDATA[Association News]]></category> <category><![CDATA[Impact Brief]]></category> <guid isPermaLink="false">https://chronicdisease.org/?p=92351</guid> <description><![CDATA[The Chickasaw Nation’s Division of Research and Public Health is increasingly integrating Adverse Childhood Experiences (ACEs) prevention in multiple initiatives to improve population level health. Join us on May 14, […]]]></description> <content:encoded><![CDATA[<p>The Chickasaw Nation’s Division of Research and Public Health is increasingly integrating Adverse Childhood Experiences (ACEs) prevention in multiple initiatives to improve population level health. <a href="https://chronicdisease.zoom.us/webinar/register/WN_4bpj-avQS8qakB45K6DdfQ#/registration" target="_blank" rel="noopener">Join us on May 14, 2024 at 2:00-3:30 p.m. ET</a> for a special presentation from the Chickasaw Nation. This presentation will describe how awareness and capacity building efforts undertaken in recent years are contributing to a longer-term initiative to develop and use data for effective action in reducing ACEs and mitigating their impacts. The webinar is the result of a partnership between NACDD and CDC’s Cancer Prevention Across the Lifespan to foster innovative public health approaches to cancer prevention.</p> <p>ACEs are potentially traumatic events that occur before age 18. Examples include experiencing violence, abuse, or neglect; witnessing violence in the home or community; and having a family member attempt or die by suicide. ACEs also include aspects of the child’s environment that can undermine their sense of safety, stability, and bonding, such as growing up in a household with substance use problems, mental health problems, and instability due to parental separation or household members being in jail or prison. Communities can help prevent ACEs and reduce the harm they cause.</p> <p>Research findings estimate that at least 6% of cancers could be prevented if children didn’t experience ACEs. That adds up to about 100,000 cancer cases per year that could be prevented. ACEs have been linked to a number of cancer risk factors, including tobacco use, alcohol and substance use disorders, injection drug use, obesity, and sexual risk behaviors. Further information on ACEs may be found <a href="https://www.cdc.gov/cancer/aces/index.htm" target="_blank" rel="noreferrer noopener">Adverse Childhood Experiences (ACEs) and Cancer</a>.</p>]]></content:encoded> </item> </channel></rss> If you would like to create a banner that links to this page (i.e. this validation result), do the following:
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